Monday, January 11, 2010

Hunger Strike

I can't believe it has come to this, but Marley has stopped eating food.

And I am miserable.

At first Marley just started rejecting purees. But over this weekend not only will she not eat purees but she won't swallow any food. Any food that reaches the back of her mouth causes her to gag and choke violently. She will not eat, I assume, because she is afraid of choking.

My only saving grace is that she is still drinking milk from her sippy cup. But it is not nearly enough to make up for the lost calories she was getting from food.

So she isn't gaining weight and I find out tomorrow if she is actually losing weight. And losing weight would be a disaster.

On top of all that she was just starting to get better from 5 weeks of a viral congestion and ear infection. Now she is sick all over again accompanied by diarrhea and chest congestion.

Last night she barely slept and either did I.

I spoke with her feeding therapist and pediatrician today and I am hoping to find some answers and more importantly some solutions. I expect Marley will be having a swallow study by the end of the week to rule out any physical conditions for her gagging and choking. But I am not feeling very optimistic that she is going to get better anytime soon.

I am trying so hard to get through this without stressing out too much but I am feeling very quickly that I am reaching my limit.

Deep breath...


NorthBeachMamacita said...

This post brought tears to my eyes. Saying sorry you have to deal with this does not accurately suffice. I hope the best: that you get some answer and the strike does not continue for much longer. We love all three of you so much.

Meghan said...

Hugs to you. I hope you get some answers soon and that Marley will be able to eat. You are in my thoughts.

Kay Sterner said...

I'm so sorry, Amanda. I love you so much!

Leah's Mum said...

I felt moved to comment. We know you guys through the Naylor-Lindens. Keeping our fingers crossed that this doesn't continue much longer and that brave little Marley starts to eat soon. We think of you all the time.